Dret de la informació

La despossessió de dades d’usuaris i la privacitat en l’ús de videojocs: el cas de Steam

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Objectius: analitzar la percepció de la comunitat d’usuaris de videojocs a la plataforma Steam davant la modificació de polítiques de privacitat i la seva repercussió en l’ecosistema econòmic i lúdic.

Metodologia: anàlisi netnogràfica de 1.039 comentaris derivats de la publicació oficial de les noves polítiques de privacitat en Steam. S’agrupen els comentaris per temàtica i es confronten amb relació a la pràctica discursiva.

Resultats: l’anàlisi mostra dos posicionaments, un de més pragmàtic i econòmic i l’altre, més social i garantista, que difereixen notablement en la percepció de la plataforma de jocs i en les conseqüències derivades de la nova regulació. Així, el primer nega el caràcter de xarxa social de Steam i, per això, admet l’ús de dades privades en obert i per part de tercers sense consentiment com Steamspy. D’altra banda, la visió garantista assumeix la primacia de la titularitat dels drets en contraposició a la lògica comercial, i s’allunya de la idea mercantilista i s’apropa a la de dret fonamental. — Objetivos: analizar la percepción de la comunidad de usuarios de videojuegos en la plataforma Steam ante la modificación de políticas de privacidad y su repercusión en el ecosistema económico y lúdico.

Metodología: análisis netnográfico de 1.039 comentarios derivados de la publicación oficial de las nuevas políticas de privacidad en Steam. Se agrupan los comentarios por temática y se confrontan con relación a la práctica discursiva.

Resultados: el análisis muestra dos posicionamientos, uno más pragmático y económico y otro más social garantista, que difieren notablemente en la percepción de la plataforma de juegos y en las consecuencias derivadas de la nueva regulación. Así, el primero niega el carácter de red social de Steam y, por ello, admite el uso de datos privados en abierto y por parte de terceros sin consentimiento como Steamspy. Por otro lado, la visión garantista asume la primacía de la titularidad de los derechos en contraposición a la lógica comercial, alejándose de la idea mercantilista y acercándose a la de derecho fundamental. — Objectives: To analyse the response of the video gaming community to Steam’s privacy policy update and examine the users’ perception of the repercussions of this update on the platform’s financial and gaming ecosystem.

Methodology: A netnographic analysis was conducted of 1,039 user comments responding to Steam’s official announcement of the update. The comments were grouped by theme and contrasted according to the position taken by the users.

Results: The analysis showed that Steam users took one of two positions which, in turn, revealed two contrasting perceptions of the overall nature of the platform and of the consequences of the update. Either they were pragmatic, understanding the update in financial terms, or they were more concerned with the social guarantee the platform should offer. The pragmatists, who did not regard Steam as a social network, accepted that users’ personal data could be made available without consent to third party services like the tracker Steam Spy, while defenders of the social guarantee argued that the defence of user privacy should come before any kind of commercial gain and that users’ data ownership rights should be regarded as a fundamental right.

Ètica de la informació mèdica en la indústria farmacèutica: recomanacions a partir de la primera “Guía de buenas prácticas de información médica en la industria farmacéutica española”

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Esquema dels cinc passos en la medicina basada en l'evidència

Objectives: In the absence of specific legislation, the Work Group on Medicines Information of the Medicines Association of the Spanish Pharmaceutical Industry (Asociación de Medicina de la Industria Farmacéutica, AMIFE) decided to define and delimit the obligations involved in managing medicines information in the pharmaceutical industry. Although certain international guides are currently available, it was considered necessary to write a Spanish guide that could be used by pharmaceutical companies and professionals and whose demands for quality standards in the sector could also be shared with the medical community, patients and the public at large.

Methodology: In the course of one of the Group’s regular meetings, group members were invited to participate in one of the project areas, which were the planning, write-up, evaluation of experts and publication of the guide in chapters. After choosing two project coordinators, the members agreed on the subjects to be covered and established the structure for the chapters. It was decided that each chapter should include a comprehensive review of a subject and observations or conclusions that would form the basis for a series of recommendations After drafting an initial table of contents, the group invited a series of professionals to work as voluntary authors, selecting these on the basis of their experience and main field of interest. When the authors had completed the first draft of the chapters, the Group coordinators appointed two members of the group to review each chapter and check it for missing information or errors of content or form. The coordinators then reviewed the chapters themselves to ensure the consistency of the overall guide and drew up conclusions and recommendations that were reviewed by the rest of the group and voted in or out of the final document.

Results: The result was the Guía de buenas prácticas de información médica en la industria farmacéutica española. The twelve chapters comprising the guide reviewed the functions and importance of medicines information, the features and activities of the different areas of medicines information, the training and qualification frameworks of medicines information professionals, standard work procedures and the legal and ethical frameworks informing these, legislation on intellectual property rights, the importance of the role of evidence-based medicine and of quality assurance and the challenges that medicines information will have to face in the future. Fifteen conclusions or recommendations were also made at the end of the document.